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Information for journalists

These are our standard notes to editors, along with a list of spokespeople, downloadable statistics and facts on brain tumours.

If you require any further information please contact our PR team on 01252 237864 or 07990 828385, or email pressoffice@thebraintumourcharity.org

About The Brain Tumour Charity

Registered Charity No. 1150054 (England & Wales) SC045081 (Scotland)

The Brain Tumour Charity Facebook Page

The Brain Tumour Charity Public Twitter Profile

The Brain Tumour Charity is the UK’s largest dedicated brain tumour charity, committed to fighting brain tumours on all fronts.

The Charity funds pioneering research to increase survival and improve treatment options.

It raises awareness of the symptoms and effects of brain tumours to get faster diagnosis and to help families cope with everything that the diagnosis of a brain tumour brings. Its strategic aims are to double survival and halve the harm caused by brain tumours by 2030.

It also provides specialised support for everyone affected so that they can live as full a life as possible, with the best quality of life.

The Charity funded and promoted the UK-wide HeadSmart campaign to raise awareness of the signs and symptoms of brain tumours in children and young people to make faster diagnosis a reality. HeadSmart reduced average diagnosis time from 9.1 to 6.5 weeks – reducing long-term disabilities and saving lives.

The Charity is a member of the Association of Medical Research Charities, The Information Standard, The Helplines Partnership and the Fundraising Standards Board.

The Facts

  • Brain tumours are the biggest cancer killer of children and adults under 40.
  • More than 12,000 people are diagnosed with a primary brain tumour each year – an average of 34 people daily.
  • Around 5,300 people lose their lives to a brain tumour each year; thousands more are diagnosed with secondary brain tumours, which are not recorded.
  • Brain tumours are the largest cause of preventable or treatable blindness in children.
  • Brain tumours reduce life expectancy by an average of 27 years – the highest of any cancer.
  • Just 12% of adults survive for five years after diagnosis.
  • Childhood brain tumour survivors are 10 times more likely to suffer long term disability than well children.
  • This accounts for 20,000 additional disabled life years for all the children who are diagnosed each year.

Our spokespeople

Please get in contact with the PR team if you would like to interview one of our spokespeople about our research, fundraising or strategy.

What we think

End of life care –

This document provides provides some information about end of life care for people with a terminal brain tumour diagnosis, The Brain Tumour Charity's views on what should be made available, and what we are doing to address the issues raised.

Proton Beam Therapy –

This document provides our position on proton beam therapy, a form of radiotherapy typically used to treat more complex tumours.

Ketogenic Diet –

This document provides an overview of the ketogenic diet, how it relates to brain tumours, and our position on the issue.

Media contacts at The Brain Tumour Charity

Press office contact details (Mon-Fri, 9am-5pm): 01252 237864
Out of hours: 07990 828385
E: pressoffice@thebraintumourcharity.org

Jo Porter, PR Manager (Charity and Policy)
E: joanne.porter@thebraintumourcharity.org
T: 07988 678456

Piers Townley, PR Manager (Fundraising and High Profile Supporters)
E: piers.townley@thebraintumourcharity.org
T: 01252 749991

Jade Passey, Senior Press Officer (Science and Health)
E: jade.passey@thebraintumourcharity.org
T: 01252 237791