Welfare and Benefits

Ensuring fair access to welfare and benefits for those in need is one of The Brain Tumour Charity's campaigning priorities across 2017 and 2018.

The findings of our Losing Myself report in 2015 highlighted how a brain tumour diagnosis can have a serious impact on personal finances and the ability to work:

  • 1 in 2 experience financial difficulty
  • 28% have had to give up work entirely
  • 3 in 4 people have had their/their partner's working life affected

In response to the need of our community, we launched our Benefits Clinic in 2016, which provides information about financial support and benefits that brain tumour patients and their families might be entitled to.

The Benefits Clinic has highlighted some serious barriers that brain tumour patients face in navigating the benefits system across the UK, both in the assessment and application process.

What we are campaigning for

We're campaigning for change so that the politicians and assessors understand how brain tumours can impact those affected on a daily basis, to ensure those affected are able to access the financial support they need.

Financial Impact Survey

The Brain Tumour Charity has conducted a survey to understand more about the financial impact of having a brain tumour and the experience of those affected in navigating the benefits system across the UK.

The survey which is now closed had almost 300 responses, which we are currently in the process of analysing.

In early 2018 we'll be producing a report with recommendations to politicians, healthcare professionals and benefits assessors based on the results from this survey.

We want to use this report to lobby policymakers for fairer access to financial support and benefits for those in need.

We'll also use this feedback to help improve the information and support services that we currently offer.

If you have any questions about the survey, please contact us by emailing policy@thebraintumourcharity.org