Welfare and Benefits

Ensuring fair access to welfare and benefits for those in need is one of The Brain Tumour Charity's campaigning priorities across 2017 and 2018.

The findings of our Losing Myself report in 2015 highlighted how a brain tumour diagnosis can have a serious impact on personal finances and the ability to work:

  • 1 in 2 experience financial difficulty
  • 28% have had to give up work entirely
  • 3 in 4 people have had their/their partner's working life affected

In response to the need of our community, we launched our Benefits Clinic in 2016, which provides information about financial support and benefits that brain tumour patients and their families might be entitled to.

The Benefits Clinic has highlighted some serious barriers that brain tumour patients face in navigating the benefits system across the UK, both in the assessment and application process.

What we are campaigning for

We're campaigning for change so that the politicians and assessors understand how brain tumours can impact those affected on a daily basis, to ensure those affected are able to access the financial support they need.

Support our campaign

Financial Impact Survey

The Brain Tumour Charity is conducting a survey to understand more about the financial impact of having a brain tumour and the experience of those affected in navigating the benefits system across the UK.

If you or someone you know has been through the assessment process for benefits following a diagnosis of a brain tumour, we want to hear from you. We are also keen to hear from those whose ability to work or return to work after treatment has been affected.

Your feedback in this survey will be crucial in helping us to understand the main challenges that the brain tumour community faces in this area.

Later this year, we'll be producing a report with recommendations to politicians, healthcare professionals and benefits assessors based on the results from this survey.

You can help us with this work by completing the survey. Due to a very high uptake amongst our community, the deadline for completing the survey has been extended to Friday 20th October. You could also help us by promoting the survey on social media, so that it reaches as many people as possible

Start survey

If you have any questions about the survey, or need any help filling it in, please contact us by emailing policy@thebraintumourcharity.org