Share Your Story

Why it’s good to talk

When you or a loved one is diagnosed with a brain tumour, it can take time to absorb the news. Everyone copes this situation differently. Some people would rather deal with it privately, while others find solace in hearing about or reading about others’ experiences, and sharing their own.

Opening up to just one or two people and talking things through can help, rather than bottling up your emotions.

Experts suggest that talking about a diagnosis can have positive effects on your wellbeing. Find out more by reading our Q&A with psychologist Katherine Carpenter.

Your brain tumour – your story

If there does come a time when you’d like others to understand what you’ve been through, you’d like to share your story because you feel it would be cathartic or to aid your fundraising or awareness raising activities, we’re here to help.

So that you have as much control over this process as possible, a member of our Stories team can phone you, or arrange a video call, but if you’d prefer to record a video or voice note, or write things down in your own words, let us know by completing the form below.

You can see some examples below of stories people have chosen to share through us. They recount their experiences, explain why they were motivated to speak out and the effect that a diagnosis had had on them, their families and the wider community.