Brain tumour patients will lead the way in new global cancer databank

Friday 20 April 2018

TODAY sees the launch of the Universal Cancer Databank (UCD), which aims to gather information from people diagnosed with cancer around the world to speed up progress towards a cure

This project by the Eliminate Cancer Initiative (ECI) follows the work we have done to create our own databank, BRIAN (the Brain tumouR Information and Analysis Network), which we are building with the support of our community.

BRIAN will allow people diagnosed with a brain tumour to compare their experiences with others', as well as providing doctors and scientists with information to improve their understanding of the disease.

We are delighted that BRIAN will play a key role in the development of the UCD, with our community as a foundation stone of this global effort to cure all cancer.

Baroness Tessa Jowell, who was diagnosed with a glioblastoma last year, became the first patient to sign up formally to the UCD yesterday, underlining the focus on brain tumour patients as a priority for the project.

We know that data is key to unlocking a cure for brain tumours. We also know that collaboration is crucial. No-one can do this alone.

That's why we have pledged to contribute £20m over the next five years to the UK Brain Cancer Mission - and to work with ECI on maximising the impact of the UCD.

Sarah Lindsell, our chief executive, said: “We know that most people affected by brain tumours are ready and willing to share information about their diagnosis and experience in order to help find a cure. Many have already done so through BRIAN.

“We welcome the ECI's commitment to develop a Universal Cancer Databank and we are delighted that it will operate in collaboration with BRIAN to maximise the benefits of data-sharing for those around the world who are diagnosed with a brain tumour."

Baroness Jowell said: "It is my hope that through my cancer journey and sharing of my data, we will be able to develop better treatments for cancer and speed up the discovery of new ones."

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