News

One of our fantastic Young Ambassadors April Watkins recently met with Caroline Lucas, the country’s first Green Party MP in Brighton, where she was able to share details of our HeadSmart campaign and her personal experiences as a young adult going through treatment for a brain tumour.

The potential benefit of the Off-patent Drugs Bill to people affected by a brain tumour has been highlighted in an editorial featured in The Telegraph. The paper also features a letter in support of The Bill signed by 40 clinicians including Professor Susan Short who is leading a clinical trial to investigate the effect of hydroxychloroquine on high grade gliomas undergoing radiotherapy.

The interim report of the Accelerated Access Review, a UK Government review looking at ways to speed up patient access to new drugs, was published on the 27th October.

Cancer Research UK have released some figures that demonstrate how getting a cancer diagnosis in a timely manner varies across the UK.

The Northern Ireland Cancer Patient Experience Survey contains data on the experience of 3,200 cancer patients between 2014 and 2015, including 28 patients with high-grade brain tumours.

On Sunday, an Independent Cancer Taskforce published its report, Achieving world class cancer outcomes: a strategy for England. This sets out 95 recommendations for the delivery of services for cancer by the NHS in England for the next five years. (Tuesday July 21).

If you have a brain tumour, should it be a luxury to know you will always be able to talk to one person in your medical team who knows about brain tumours and – crucially – knows about your brain tumour and its impact on you?