Tag: policy

We welcome a new Scottish Parliament, share an update on recent activity in Scotland as well as our call for a National Brain Tumour Strategy.

While the newly elected Members of the Senedd settle into their roles and Plaid Cymru form the next government, we’re taking stock of the progress made in improving brain tumour care and outcomes across Wales. This new government brings a critical opportunity to shift the dial for brain tumour care, diagnosis, treatment and research in Wales.

Our new report explains how to unlock brain tumour innovation in the UK and the systemic barriers holding it back.

We’re celebrating the news that the Rare Cancers Act has now become law and the transformative potential this has for the brain tumour community.

Following a consultation by the Department of Health and Social Care, in which we fed back your experiences of brain tumours, we welcome the publication of the National Cancer Plan for England and its explicit focus on rare and less survivable cancers, including brain tumours.

In August 2025, Mark joined The Brain Tumour Charity’s Scottish Steering Committee. Here he shares why he joined the Committee and what he hopes can be achieved.

We provide an update on the latest developments surrounding the appraisal process related Vorasidenib.

We’ve sent your feedback to the consultation on NICE’s draft guidance on vorasidenib. These are just some of the powerful testimonies we received that formed part of that.

Despite the disappointing draft guidance published by NICE, there’s still hope that vorasidenib will be available through the NHS in England.

We provide an update on the Scottish Steering Committees decided ambitions and objectives that members will seek to achieve.

In this post we provide an update on recent Campaigns activity including on the Rare Cancers Bill and the NIHR-funded National Brain Tumour Research Consortium.

Following our previous statement in April 2025, we share the latest update on activity linked to the National Brain Tumour Research Consortium

This week we hosted a roundtable with representatives from the life sciences sector to begin to understand potential barriers to innovation across the UK.

We explore the upcoming National Cancer Plan targets and their potential impact on survival gaps in cancer treatment.

NHS Scotland has published updated referral guidance for suspected cancers – including brain. We share information on some of the key changes that have been made.

We’ve broken down what the proposed reforms were, what’s changed, and what it means for our community.

The Rare Cancers Bill is at risk of falling – we urge supporters to get in touch with their MP to ensure it progresses.

Following the launch of the UK Government’s 10 Year Health Plan, we analyse some of the key announcements that may impact the brain tumour community.

“The Rare Cancers Bill, led by Scott Arthur MP, has passed Committee Stage – bringing hope to those affected by rare and less survivable cancers, including brain tumours.”

If we’re going to improve survival rates and quality of life for people with a brain tumour, research must be shaped by those who are eligible to take part.

We share information on activity that has taken place across the UK in the drive to improve outcomes for all those affected by brain tumours.

The Government is working on a National Cancer Plan to improve patient experience for those affected. Here we share what our submission to the Government’s Consultation included.

Today we publish new research into the barriers GPs face in being able to diagnose people with a brain tumour. Read our blog overview of our findings.

A brain tumour consortium, funded by the National Institute for Health and Care Research (NIHR), with the vision to make the UK a “testbed for oncology innovation by accelerating the development of treatments for patients with brain tumours” is being developed and is aiming for real progress in “the soonest time frame possible.”