The Brainy Bag is available to all children diagnosed with a brain tumour.
Each bag is slightly different as it includes items appropriate to the age of the child.
Choroid plexus carcinomas occur within the ventricles of the brain and can block the cerebro-spinal fluid from circulating and draining, causing pressure to build up in the skull.
Choroid plexus carcinoma's occur most often in one year olds, where the signs of the raised intracranial pressure may be vomiting and lethargy (drowsiness) or your child being unable to look upwards. Their head size may also grow quickly.
Choroid plexus carcinomas are a high grade (grade 3), fast growing tumour. There is an association with the genetic condition, Li-Fraumeni syndrome.They are different from choroid plexus papillomas.
The first symptoms of a choroid plexus carcinoma may, therefore, be pressure headaches, particularly in the mornings.
Treatment involves removing as much of the tumour as possible followed by chemotherapy and, sometimes, radiotherapy. This partly depends on the age of the child, as health professionals try not to give radiotherapy to children under 3 years.
Read more about treatment options for choroid plexus carcinoma:
The types of surgery your child may have and why surgery is not possible for everyone.
The use of drugs to destroy tumour cells by interrupting or stopping their growth. It may be given with other treatments.
How radiotherapy works and what your child can expect during treatment.
Page last reviewed: 11/2015
Next review due: 11/2018
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