What to do when your child has been diagnosed with a brain tumour
If your child has been diagnosed with a brain tumour, it can be a confusing and scary time. It can make you feel sad, anxious and worried about what’s happening. We know you’ll have lots of questions like how to talk to your child, what treatments your child can have, where to find information and more.
You are not alone during this difficult time, we have developed a range of resources to help you. Here you’ll find information on child brain tumour types and treatments, talking to your child, accessing more information and getting support.
You can also contact our dedicated team with any questions or support you may need. We’re here to help you and your child.
Join our online community for parents
Our online support group is a safe and secure space to connect with other parents affected by a brain tumour and share your experiences.
Brain tumour types
Information about the types of brain tumour that occur more commonly in children.
Brain tumour treatments
Read more information about the different treatments for children with a brain tumour.
Your child’s health team (MDT)
Understand the roles of the professionals that make up your child’s health team.
Talking to children about brain tumours
Information to help guide and support those tricky conversations.
Talking to your child about their diagnosis
Advice on how to talk to your child about their brain tumour.
Paediatric Information Packs
Information booklets to help navigate a child’s brain tumour diagnosis.
Share your experiences and help create change
By taking part in our Improving Brain Tumour Care surveys and sharing your experiences, you can help us improve treatment and care for everyone affected by a brain tumour.
Children & Families Service
Support for parents and children (under 18) affected by a brain tumour
Jake animations
Animations to help explain brain tumours in a simple way, suitable for people of all ages.
Going back to school resources
Resources to help your child and their teachers prepare for going back to school.
Support and Information Services
Research & Clinical Trials Information
You can also join our active online community.