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Education resources

Returning to nursery, school or college after a brain tumour diagnosis can often be challenging for the child, their parents and teachers.

A brain tumour diagnosis can lead to the child falling behind due to time off, changes in attainment levels caused by the brain tumour and its treatment, and difficulties finding their place with peers. This can make it hard for parents and schools to know how best to support the child.

Our education resources help by giving information on what to expect and what help is available. They can be used in a variety of ways (for recording the direct support of a young person, for training staff etc) and are designed to be used as and when they are needed.

Since school makes up such a large part of a child’s daily life, this is naturally where most of their friendships are formed and strengthened, so teachers are in a great place to be able to support children to maintain their friendships following a brain tumour diagnosis.

Our "I'm still me" resources have been developed to help teachers support children affected by brain tumours.

Our education resources received Highly Commended in the BMA (British Medical Association) Patient Information Awards 2018.

Join one of our our Online Support Communities for more tips about coping with a brain tumour diagnosis, from people who truly understand what you're going through.

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More information

Possible side-effects of brain tumours and their treatment (body map) - PDF

Use this visual resource to find out about the wide-ranging possible side-effects of brain tumours and their treatment. You can also print off the body map and highlight those relevant to the young person.

Educational support strategy – full strategy (individual form) - DOCX

Download and fill in this blank form to create the individual strategy for the young person and keep with their school/college records.

Educational support strategy – full strategy (example form) - PDF

This gives examples of the areas of school/college life to be considered, areas that the young person may need support in, and examples of possible strategies. Use it when planning the young person's support strategy.

Educational support strategy – quick reference (individual) - DOCX

A quick reference version of the young person's Educational support strategy which provides at-a-glance information. It can be kept in the teacher's desk/notebook and/or the staff room, or given to supply teachers where appropriate.

Educational support strategy – quick reference (example) - PDF

Use this as an example to help create the quick reference version of the educational support strategy for the young person.

Information card – I have, or had, a brain tumour - DOCX

This card is for the young person to fill in (or fill in with their parents), giving useful information about themselves and their needs outside of the education setting. It can be kept by the young person or the teacher.

Educational charters for young people with a brain tumour

Legal frameworks for reference

Supporting you

Our Children & Families team offers support to children, young people and families affected by a brain tumour diagnosis. We're here to help with any information you might need, answer your questions, listen and provide support.

Share your experiences and help create change

By taking part in our Improving Brain Tumour Care surveys and sharing your experiences, you can help us improve treatment and care for everyone affected by a brain tumour.

If you have further questions, need to clarify any of the information on this page, or want to find out more about research and clinical trials, please contact our team:

Support and Information Services

0808 800 0004 (free from landlines and mobiles)

Phone lines open Mon-Fri, 09:00-17:00

You can also join our active online community - Join our online support groups.