A specialist nurse who is the main point of contact between you and the rest of your health team. They can offer specialist advice, information and support to you (and your family) about your diagnosis and treatment. They can also refer you to other services, if you need them e.g. fatigue management, seizure management, psychological issues, benefits. NICE guidelines state that all patients with brain tumours “should have a clearly identified key worker” to work with the patients, their relatives and carers, throughout their care. This is likely to be the Clinical Nurse Specialist.
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