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What to do when your child has been diagnosed with a brain tumour

Finding out that your child has a brain tumour can be a confusing and scary time. It can make you feel very sad, anxious and worried about what is happening. We know you will have lots of questions such as how to talk to your child, what treatments your child can have, where to find and more.

You are not alone during this difficult time, we have developed a range of resources to help you. You can also contact our dedicated team with any questions or support you may need. We are always here to help you and your child.

Join our online community for parents

Our online support group is a safe and secure space to connect with other parents affected by a brain tumour and share your experiences.

Brain tumour types

Information about the types of brain tumour that occur more commonly in children.

Pills poured in a palm. Pillbox held in the other. A cure cannot wait.

Brain tumour treatments

Read more information about the different treatments for children with a brain tumour.

Your child’s health team (MDT)

Understand the roles of the professionals that make up your child’s health team.

Talking to children about brain tumours

Information to help guide and support those tricky conversations.

my child has a brain tumour

Talking to your child about their diagnosis

Advice on how to talk to your child about their brain tumour.

Paediatric Information Packs

Information booklets to help navigate a child’s brain tumour diagnosis.

Share your experiences and help create change

By taking part in our Improving Brain Tumour Care surveys and sharing your experiences, you can help us improve treatment and care for everyone affected by a brain tumour.

Jake animation explaining about a child with a brain tumour

Jake animations

Animations to help explain brain tumours in a simple way, suitable for people of all ages.

Going back to school resources

Resources to help your child and their teachers prepare for going back to school.

If you have further questions, need to clarify any of the information on this page, or want to find out more about research and clinical trials, please contact our team:
Support and Information Services
0808 800 0004 Free from landlines and mobiles
Phone lines open Mon-Fri, 09:00-17:00