102,000 people in the UK are living with a brain tumour.
6.5 weeks - The average childhood diagnosis time is down from 13 to 6.5 weeks since introducing our HeadSmart campaign.
£45.3m funds committed to research into brain tumours.
Brain tumours do not discriminate and they do not respect boundaries. They can strike anyone, at any age. And they strike quickly.
High grade brain tumours are different to other cancers. And this means that The Brain Tumour Charity has to work differently too.
We must move further, faster to find a cure.
TO DO THIS WE ARE:
By focusing on the three key areas – research, campaigning and support – we're the only charity to help everyone affected by brain tumours.
We are the largest dedicated funder of researcher into brain tumours globally. To date, we have committed £45.3m to forward-thinking, outcomes-orientated and patient-focused research. We know that a cure can't wait. That's why we're committed to bringing about global collaboration to speed up the time it takes to turn discoveries into treatments and cures.
We fund only the very best, world-class research. Our 22 years of experience means that we are the leaders in our field. We have knowledge and expertise to successfully select the research that has the biggest potential to make a difference and we can evidence the impact of our funding to date. Many projects we have funded have already had a direct impact on patients and many more have the potential to influence treatment and prognosis imminently.
At The Brain Tumour Charity we are committed to actions, not words. We want change. And we want it now. To help accelerate this, we're working passionately to influence decision makers on issues that are important to our community and to raise vital awareness. And we're making progress. Since introducing our HeadSmart campaign – our multi-award-winning, UK-wide campaign based on research funded by The Brain Tumour Charity at The University of Nottingham –we've helped to reduce average childhood diagnosis times from 13 to 6.5 weeks.
We've also been proud to play a key role in supporting Baroness Tessa Jowell's courageous campaign, the Tessa Jowell Brain Cancer Mission. Baroness Jowell backed our campaign for 5-ALA - the 'pink drink', which makes brain tumour cells more easily visible to surgeons – to be rolled out to everyone who would benefit from it, something the Government has now pledged to enact across England.
We believe that everyone affected by a brain tumour should have quick and easy access to the right information and support for them. With a range of specialised services available including our Information & Support Line, Patient Guide, Benefits Clinic, Live Chat, Online Information Days, Family Days, Teenage and Young Adult Service and online communities, we have a service tailored to meet the needs of everyone affected by a brain tumour.
Our resources provide an invaluable lifeline to thousands of people every year and we are constantly exploring ways to expand them further.
We know that only by working together can we find a cure faster. That's why we're proud to connect the most prestigious researchers, collaborate with the most respected organisations and build the most passionate communities around the globe. We value everyone's contribution. Recently we've joined forces with other like-minded organisations such as Cancer Research UK, Worldwide Cancer Research and Marie Curie to accelerate progress in how we fight brain tumours. We understand that our goals are ambitious. But by joining together, we know that we can reach them faster.
We aim to spend at least 80p of every £1 spent on our charitable objectives, making us an extremely efficient and cost-effective charity. We pride ourselves on our honesty and transparency. We track every penny we receive and use rigorous peer review to ensure that we are investing it into the most valuable research projects.
As members of the Fundraising Regulator's self-regulatory scheme you can give to us with confidence, knowing that we comply with its principles.
Detailed spending information is available in our current annual report and accounts.
We're not afraid to be a leader in our field. Whilst survival has doubled across all cancers, changes in survival rates for adults with a brain tumour have improved little compared with other cancers in over 40 years.
Now is not the time to be timid if we want to change this shocking position.
That's why we're not afraid to be pioneering, systematic, risk taking and courageous in our approach to changing outcomes. And our efforts are paying off.
In the last year alone, we've made huge advances in developing BRIAN (the Brain tumouR Information and Analysis Network) our global brain tumour databank, which will allow patients and researchers to gain insights into different tumour types and help us to reach a cure quicker. We are also paying for all children diagnosed with a medulloblastoma in the UK to receive biomarker testing. This is the first time biomarker testing will be routine for those diagnosed with a brain tumour. With a more accurate diagnosis, all families affected by medulloblastoma will have a better understanding of the tumour, allowing them to make more informed decisions about treatments and quality of life.
Through our innovative approach towards research into brain tumours and the support services we offer, we're making crucial headway towards a better life for everyone affected by a brain tumour. But we know that there is much more to do.
We have to further our understanding of brain tumours and improve the treatments available.
We need to help all those affected by brain tumours to live longer and better lives.
We must defeat brain tumours and brain cancer for good.