The first and main part of standard treatment for these tumours is surgery to remove as much of the tumour as possible. In some cases craniopharyngiomas contain fluid or invade neighbouring tissue making it very hard to remove the tumour completely. If this is the case your surgeon may create a passage for the tumour’s fluid to drain in the liquid-filled spaces of the brain known as ventricles.
You will also probably have radiotherapy after surgery. In some cases (for example if the tumour is small or it has well defined borders), your specialist may suggest stereotactic radiotherapy or proton beam therapy, which is targeted at the tumour.
Radiotherapy can slow down the growth of the tumour and keep it under control.
Join our community on Facebook
Our closed Facebook group for parents is a great place to connect with other parents affected by a brain tumour and share your experiences.
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If you need someone to talk to or advice on where to get help, our Support and Information team is available by phone, email or live-chat.
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