Improving Brain Tumour Care surveys share your experiences and help create change

Treating pineoblastomas

After a pineoblastoma is diagnosed through scans and/or a biopsy, your MDT will consider the best treatment option for you.

Surgery

Surgery to reduce the size of the tumour or remove it completely is an essential part of brain tumour treatment in general. However, due to the position of pineoblastomas deep within the brain, surgery may not always be a viable option as there could be a risk of damaging critical areas of the brain. Even if doctors deem that surgery is possible for a pineoblastoma, in most occasions it does not result in complete resection. This is because pineoblastomas, grade four tumours, may have already invaded other, difficult to reach parts of the brain or spine.

Due to the swelling and pressure on the brain, you may have surgery to drain the buildup of fluid. Some neurosurgery centres offer a minimally invasive procedure called endoscopic third ventriculostomy which which will not require surgery. Steroids may also be prescribed to manage swelling associated with hydrocephalus.

A woman feeling supported as she scrolls through the posts in one of The Brain Tumour Charity's Online Support Groups.

Join our community on Facebook

Our closed Facebook group for parents is a great place to connect with other parents affected by a brain tumour and share your experiences.

Radiotherapy

Radiotherapy is the gold standard of treatment for pineoblastomas. Depending on factors such as whether cancerous cells have spread to other parts of the brain, your MDT will decide the type of radiotherapy you will have and at which dose. Pineoblastomas may also be treated with chemotherapy.

If you have further questions, need to clarify any of the information on this page, or want to find out more about research and clinical trials, please contact our team:
Support and Information Services
0808 800 0004 Free from landlines and mobiles
Phone lines open Mon-Fri, 09:00-17:00

In this section

A member of our Support & Information Team provides support over the phone to somebody affected by a brain tumour diagnosis

Get support

If you need someone to talk to or advice on where to get help, our Support and Information team is available by phone, email or live-chat.

Share your experiences and help create change

By taking part in our Improving Brain Tumour Care surveys and sharing your experiences, you can help us improve treatment and care for everyone affected by a brain tumour.