Raising funds for The Brain Tumour Charity inspired by Ali Repper
We are saddened to share with you the news that Ali passed away on Thursday 27 April 2017. Ali's family would like everyone to take some of his bravery and humour going forward and always remember the amazing man that he has always been.
In August of 2013 at the age of 24 I (Ali) received the news that I had a large and incurable brain tumour - currently a grade 2 astrocytoma. The only sign had been two seizures I had the previous week. As it is unable to be removed or cured, its growth is being monitored by MRI Scans. Naturally, it felt like my entire life had changed direction, especially as this was very early and uncertain days. The uncertainty of how long you will have to live is the obvious thing but side effects of the epilepsy associated with it and the medication, losing the ability to drive (for now), effects on friends and family and more all takes its toll.
I've been extremely lucky to have great support from family, friends old and new, medical staff and my work, who have all helped in many ways. If anything, it's been a kick up the arse to start doing a bit more living!
Through this experience, my brothers (Steven and Graham) and I came across "The Brain Tumour Charity". They are extremely involved across the UK in funding research, providing support, giving advice etc. and we have been inspired to try and help towards their cause given my own on-going experience and the helpfulness and friendliness of their staff / volunteers we have already met.
Since formation of our supporters group 'The Repper Brothers Fund' we have now raised over £42000. The response and support from everyone has been fantastic and a real team effort. We first began raising money through sponsored 10K running events. During the Baker Hughes Aberdeen 10K I actually had a seizure 2K in but after some time out carried on an completed the race! Since then we've been pretty busy - Graham has taken part in various marathons and a skydive with his pals, Steven completed a Scottish coast to coast cycle with friends, a charity pub quiz and many more fundraisers. We've also been really lucky in gaining the support of local businesses who have allowed us to place charity collection tins and hold in-store collections.
Raising money and awareness of the charity and brain tumours has become a real focus and positive for us and something we will continue indefinitely.
For more information, photos etc. please visit the links below.