Children and Families Service

Our dedicated Children and Families Service offers support to children and families affected by a brain tumour diagnosis. We're here to answer your questions and help you develop ways to cope, take control and build networks so you feel less alone.

What we offer

Our dedicated Children and Families Service aims to reduce isolation and anxiety for children and their families by giving them the help, understanding and support they need following a brain tumour diagnosis.

Our help and support for children and families living with a brain tumour includes:

  • Emotional and practical support with dedicated Children and Families Workers
  • A closed Facebook Group for parents to help you connect with others in a similar situation, no matter where you live
  • Family Days held across the UK
  • Education resources that will help your child and their teachers prepare for going back to school following diagnosis or treatment
  • Paediatric Information Days held in partnership with some of your healthcare teams from Primary Care Trusts
  • The Brainy Bag – containing a gift for a child diagnosed with a brain tumour and information for parents

We also have a dedicated service for teenagers and young adults.

Get in touch

To learn more about the service and see how we can help, please get in touch with the team:

New Information and Support Line opening hours

You can call our team Monday to Friday, on 0808 800 0004. To provide a wider window of opportunity to contact us, we will be trialling extended hours across our support services throughout July and August. Our opening hours between 2 July and 31 August will be as follows:

  • Monday 9am to 5pm
  • Tuesday 9am to 5pm
  • Wednesday 9am to 9pm
  • Thursday 9am to 9pm
  • Friday 9am to 5pm

Information and advice

It's natural to have lots of questions about what's going to happen following a brain tumour diagnosis. If you want to read more, our website has information about a wide range of topics, from side-effects to money advice.

Brain tumour types

Information about the types of brain tumours that occur in childhood.

Brain tumour treatments

Read more about treatments for childhood brain tumours.

Your child’s health team

Learn about the multi-disciplinary team responsible for your child’s care.

Our animations for children

Meet Jake, who's eight and living with a brain tumour. He can help explain all about brain tumours in children and their treatment. Charlie's Mum has a brain tumour, he tells us what it's like at home and how things have changed.