Join our community on Facebook
Our closed Facebook groups are a great place to connect with other people affected by a brain tumour and share your experiences.Facebook support groups
Learning new coping strategies can help people living with a brain tumour (and those around them) feel more able to cope and reduce feelings of frustration or isolation.
There are some simple changes you can make that may help you if you are experiencing communication problems.
As communication is a two way process, the way that those around you communicate with you is very important.
Use BRIAN’s quality-of-life tracker to record when and how severely you have problems with comminication. Then share this with your healthcare team to get the support you need.
BRIAN is our trusted online app where you can track your experience, compare it with others who’ve been there and get the knowledge you need to make informed decisions.
One key way others can help is by being supportive, and to adapt to the way they communicate in order to facilitate your understanding and self expression.
Also, many carers have found that it is important not to do too much for their loved one just because it is easier, and to remember that the person with dysphasia is:
There are also many organisations that specialise in equipment, or other forms of support, for people with communication difficulties.
If you have not been referred to a speech and language therapist (SLT), you can ask your health team to be referred.
The SLT will give you a variety of spoken and written tests to assess which sort of communication difficulties you are having and to what degree. These tests may include naming objects, engaging in conversation, telling a story/joke, or writing a shopping list.
They will use various tools and exercises to work with you towards:
If you have further questions, need to clarify any of the information on this page, or want to find out more about research and clinical trials, please contact our team:
0808 800 0004 (free from landlines and mobiles)
Phone lines open Mon-Fri, 09:00-17:00
You can also join our active online community on Facebook - find out more about our groups.