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Communication difficulties (like problems with speaking and understanding language) are a common side-effect of a brain tumour. However, if you, or your loved one, are affected, some of the following coping strategies may help you continue with your daily life and feel more confident again.
Use BRIAN’s quality-of-life tracker to record when and how severely you have problems with comminication. Then share this with your healthcare team to get the support you need.
Not everyone with a brain tumour will experience speech and language, or they may be so mild that they don’t greatly affect daily life. But, if you are affected, you may feel angry and in despair, embarrassed, less confident, and anxious in social situations.
However, you’re not alone. There are people you can turn to and things you can do. And we’re with you every step of the way; before, during and after diagnosis.
The first half of this page mostly concerns advice for those living with a brain tumour diagnosis. Learn more about the help available for carers, friends and family of somebody affected.
Speech therapy was really worthwhile… with the help of speech therapy and my family, I did start to improve… the speech therapy helped allow my brain to come back to the point of where it can after all that trauma.
One of the main resources available to you is speech & language therapists (SLTs). SLTs are an important source of support and can help you to understand, cope with and sometimes improve your speech and language difficulties.
An SLT will give you spoken and written tests to assess what problems you have with language and to what degree. These tests may include naming objects, engaging in conversation, telling a story or joke and writing a shopping list. Therapists use various tools and exercises to work with you towards:
And remember, we’re here with you every step of the way, offering you, and your loved ones, impartial guidance, expert information or simply someone to talk to. All our information and support services are available free of charge, including our benefits clinic, which provides advice on the financial support that you may be eligible for.
You may find getting a Just a Minute (JAM) card useful. This is a small card that explains to people (such as shop assistants or receptionists) that you have a difficulty, helping you get some patience and understanding, feel better able to cope and save you energy.
If you’re struggling to communicate, have difficulty finding the right words or are struggling to follow conversations, a speech and language therapist can help, providing strategies to help you.
If you’re interested in finding a speech and language therapist, there are different ways you can do this.
Speak with your medical team, such as your consultant, clinical nurse specialist or GP. Explain that you think you would benefit from seeing a speech and language therapist, and they can make a referral to your local team for you.
Keep in mind that there can often be a little bit of a wait for a referral, so make sure you have these conversations as soon as possible.
Some people also consider seeing a private or independent SLT. If this is something you’re interested in, the Association of Speech and Language Therapists in Independent Practice (ASLTIP) can help you find the right therapist for you.
They have a database of therapists on their website, which allows you to search in your local area for specific, independent SLTs. You can filter your search based on your age, what type of therapy or support you’re looking for and how far you’re willing to travel.
When looking for the right SLT for you, we recommend you search for therapists who work with adults with acquired brain injuries as this is likely to include brain tumours.
When the improvements from my speech therapy got to a peak, I was adding to that by trying to push myself to continue speaking to my friends and, if I got something wrong I asked for help... I even started walking down the town and speaking to people as much as I could there.
If you’re experiencing speech and language difficulties, there are some techniques to help you better manage your communication difficulties.
Speech and Language Therapist Rehana Begum suggests five simple techniques to help. You can:
For more tips to help your speech and language, Neuro-oncology specific Speech and Language Therapist at The Christie NHS Foundation Trust, Julie Emerson shares more techniques you can use.
When somebody experiences speech and language difficulties, the people around them are also affected. Carers, family and friends often report feeling lonely and isolated. They can feel helpless or even guilty watching their loved one struggle to communicate.
For this reason, it’s important that carers look after themselves too. It’s well-known, but often forgotten, that you can only care well if you care for yourself. And it can be easy as a carer to forget that you deserve to be taken care of too.
While it’s important you’re in good health (mental and physical) so you can care for your loved one, it’s also important you remember to take care of yourself for you too.
Being a carer is a selfless and difficult thing to do, and likely not something you ever expected or wished to be doing. So be kind to yourself and remember to take a short break, a day away from it all or take time to share with a loved one. This can be as simple as finding out more about the support available for carers.
Speech and Language Therapist Rehana Begum says, “It can be challenging to support someone with a communication difficulty. You may experience a range of difficulties and emotions such as:
Remember to consult your GP or your loved one’s specialist team for support.”
If you’re a carer for someone with language difficulties, or a friend or family member, one key way to help is by being supportive and adapt to the way they communicate.
Neuro-oncology specific Speech and Language Therapist at The Christie NHS Foundation Trust, Julie Emerson shares some of the main things to remember when speaking to someone with language problems. Remember they:
For more tips on helping someone who's experiencing speech and language difficulties, Julie Emerson shares more techniques you can use.
There are many organisations that specialise in equipment, or other forms of support, for people with communication difficulties.
Find out more about speech and language difficulties by downloading our full factsheet.
Learn about strategies for coping with speech and language difficulties in our full factsheet.
If you need someone to talk to or advice on where to get help, our Support and Information team is available by phone, email or live-chat.
By taking part in our Improving Brain Tumour Care surveys and sharing your experiences, you can help us improve treatment and care for everyone affected by a brain tumour.
If you have further questions, need to clarify any of the information on this page, or want to find out more about research and clinical trials, please contact our team:
0808 800 0004 (free from landlines and mobiles)
Phone lines open Mon-Fri, 09:00-17:00
You can also join our active online community - Join our online support groups.