Tag: policy

Cameron Miller, our Information & Support Services Manager, outlines the growing trend for crowdfunding for treatment funds.

On Monday The Brain Tumour Charity attended the second meeting of the task and finish working group on research into brain tumour (TFWG) which was set up by the Department of Health to address barriers to research.

Policy Officer, James Thorneycroft, discusses how leaving the EU could affect research into brain tumours.

David Jenkinson, Chief Scientific Officer at The Brain Tumour Charity, discusses laying foundations for more effective brain tumour treatments.

Beccy Shortt, our Senior Policy and Public Affairs Manager at The Brain Tumour Charity explores the barriers surrounding brain tumour research.

Patients diagnosed with cancer should be told clearly how the NHS will store and use information about their case to help others in future, says a new report.

We attended the Task and Finish Group on brain tumour research. As experts in the brain tumour research landscape, we were invited to be part of this group following the petitions committee debate on the funding of research.

An innovative programme to improve the care and experience of patients with incurable cancer is being rolled out across the country.

People affected by a brain tumour continue to report a poorer experience of diagnosis, treatment and care when compared across all cancers according to the largest survey of cancer patients in England.

The National Institute for Health and Care Excellence (NICE) have today released a new Quality Standard (QS) for referral when Cancer is suspected.

On the 23rd June 2016 the UK voted to leave the European Union (EU). We do not yet know how this will affect the brain tumour community.

The report follows a debate about funding for brain tumour research in the House of Commons on April 18.

Yesterday saw the Petitions Committee report on research funding into brain tumours debated by MP’s in Westminster Hall. Over 40 MPs spoke at the debate, with only standing room left as proceedings began.

A call for government action to prioritise brain tumour awareness and research funding will be debated in the House of Commons on April 18.

Last week, the UK Government announced changes to the eligibility criteria for Personal Independence Payments (PIP) as part of the 2016 Budget.

The e-petition calls on larger cancer charities and the government to invest more in research into brain tumours.

This March we’ll be launching manifestos in Scotland, Wales and Northern Ireland ahead of the devolved nations’ elections in May.

On Wednesday 9th December the All Party Parliamentary Group (APPG) on Brain Tumours held a meeting in Westminster to discuss the new five year Independent Cancer Taskforce Strategy. The event was well attended and several MPs came along to listen to the experiences and concerns of our supporters.

We were recently pleased to hear that the National Institute for Health and Care Excellence (NICE) will be developing a new guideline on primary brain tumours and cerebral metastases.

We would like to invite you to our meeting of the All-Party Parliamentary Group (APPG) on Brain Tumours.

Brain tumour patients are more likely to be diagnosed via a hospital A&E department than those with any other type of tumour, new figures show.

The Off-patent Drugs Bill has been blocked at its second reading in the House of Commons despite support from MPs of both parties and a number of charities and health organisations. It will be put onto the agenda for another reading in December, however is unlikely to be allocated time for debate.

One of our fantastic Young Ambassadors April Watkins recently met with Caroline Lucas, the country’s first Green Party MP in Brighton, where she was able to share details of our HeadSmart campaign and her personal experiences as a young adult going through treatment for a brain tumour.

The potential benefit of the Off-patent Drugs Bill to people affected by a brain tumour has been highlighted in an editorial featured in The Telegraph. The paper also features a letter in support of The Bill signed by 40 clinicians including Professor Susan Short who is leading a clinical trial to investigate the effect of hydroxychloroquine on high grade gliomas undergoing radiotherapy.