Talking to your medical team is important - asking questions can help you to understand your condition and allow you to make informed decisions about your treatment and care. You may want to write down a list of questions, or print this list to take with you when you see your medical team.
These questions have been written from the perspective of a patient and are not an exhaustive list. There may be additional questions that you may also want to ask that are important to you. Some questions may be personal and difficult to ask, your medical team will be used to answering these and will be happy to help.
Don't worry if you don't get to ask all of your questions at once, or if you think of further questions, you may be appointed a key worker within your medical who will be your main point of contact. They will be able to help answer the questions you have, or refer you to someone that can help.
What type of brain tumour do I have?
What grade is my brain tumour? And what does this mean?
What size is my brain tumour?
Where is my brain tumour located?
What treatments are available to me?
What are the risks and benefits of these treatments?
What are the possible side effects of treatment, both long and short term?
Are there any biomarker tests available to me?
How often will I have to come to hospital for treatment?
Is there any transport or help with cost of fares to the hospital?
When should I start treatment?
Are there any clinical trials available to me?
Will any treatments prevent me from being able to take part in a clinical trial in the future?
What is the likelihood of my tumour reoccurring? If this occurs what treatment options will be available to me?
Do you know what to expect?
Our Patient Guide outlines the standards of care we believe all adults diagnosed with a brain tumour should expect from the NHS.
Know who and what to ask, and feel confident when discussing your options with your medical team.