Take part in a clinical trial
A clinical trial is an experiment that involves patients in a new way of managing a condition. This might include investigating a new treatment, a new way of giving an existing treatment, or a new approach to diagnosing an illness or assessing an outcome after treatment.
Clinical trials are run because there is belief that the new way may be better than the standard way, and trials are vital to establish whether this is so. There is no guarantee of this, however - clinical trials are experimental by nature and there is a chance that the new way will be no better, or not as good even, as the standard way. Unexpected side-effects are also a possibility, or you may be put into the 'control group', which receives a placebo (dummy drug) or the standard existing treatment, rather than the new treatment.
If you are interested in taking part, or your child taking a part, in a clinical trial, speak to your/your child's health team about trials that may be suitable.
Before searching, it is best to have the following information to hand about your/your child's tumour:
- Tumour type
- Tumour grade
- Location of tumour within the brain
- If the tumour is newly diagnosed or recurrent
- Results of any biomarker testing
- Any previous or current treatments for the tumour
- If you have you had to stop any treatments, and why
- Your/your child's age
- Your/your child's general health, including any other medical conditions or any medications being taken.
Finding a clinical trial
Clinical trials take place globally and there are a number of different databases that you can search to see what is available. If you find a trial that you think is suitable, you should speak to your doctor.
Whilst we are unable to recommend any individual clinical trial search platforms, we have heard from our community that they have found the following sites useful.
Global clinical trials databases
Provided by the US National Library of Medicine, it's a database of privately and publicly funded studies around the world, including the UK.
MyTomorrows is a free platform that helps patients and physicians to access drugs that are still in development.
USA clinical trials databases
Provided by the National Brain Tumour Society in the US, it covers trials in the USA only.
Please remember that clinical trials have strict eligibility criteria, which you must meet in order to join the trial.
If you need help with searching for a trial, please speak to your health team about trials that may be suitable for you.