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Meningioma UK and The Brain Tumour Charity have joined forces!

Welcome to The Brain Tumour Charity’s website. Meningioma UK and The Brain Tumour Charity have joined forces to make sure everybody affected by a meningioma receives the support they need.

The merger will empower us to support more families whose lives are shattered by a meningioma diagnosis and will help accelerate progress towards the cure for brain tumours that is needed so urgently.

We are thrilled that Ella and the Trustees at Meningioma UK have chosen to put their trust in The Brain Tumour Charity to continue vital support to you and our wider community, we believe that by coming together we will be able to make an even bigger difference to everybody affected by a meningioma.

Meningioma information

As part of the merger, we’re working together to make sure that the wealth of knowledge possessed by the team at Meningioma UK is incorporated into The Brain Tumour Charity’s resources. 

This is an ongoing project, but you can find out more information about meningiomas on our website or by downloading our meningioma factsheet.

Find out more

Download our meningioma factsheet

Meningioma factsheet – PDF

Find out more about meningiomas, including symptoms, treatments and risk factors in our new meningioma factsheet.

Our support services

Whether you’ve been diagnosed with a meningioma or a loved one has, we provide a wide range of inclusive and accessible support services for everybody affected by a brain tumour – including our dedicated Children & Families Team and Young Adults Service.

Our Support & Information team can help you better understand a diagnosis, connect you with other people who understand what you’re experiencing or simply listen to your concerns. And, we offer more specialised services through our partnerships with organisations like Citizens Advice and Relate

Simply put, we’re here to help at every step, whenever you might need us.

Get support

A member of our Support & Information Team provides support over the phone to somebody affected by a brain tumour diagnosis.

Meningioma research we’re funding

The merger has been welcomed by leading figures in the brain tumour research community.

Professor Richard Gilbertson said: “This merger is extremely exciting news. Creating larger communities that work together to advance understanding and treatment of rare diseases is critical.
“The merger will accelerate progress, without doubt; driving new research and improving clinical practice, allowing the voice of many, not a few, to be heard.”

The Brain Tumour Charity are the leading funder of brain tumour research in the UK and have committed over £50 million to date. 

We’ve recently comitted another £4.8 million of funding over the next five years, including a pioneering project to help identify key DNA mutations within a cell that start, as well as maintain, the growth of high grade meningiomas

Our meningioma research

About The Brain Tumour Charity

The Brain Tumour Charity – created in 2013 and now the largest charity in the field, with an annual income of around £12m – was itself born out of a merger between three organisations: the Samantha Dickson Brain Tumour Trust, the Joseph Foote Trust and Brain Tumour UK.

Named as Charity of the Year at the Third Sector Awards in 2018 and recently one of the best Charities to Work For, The Brain Tumour Charity funds research into all types of brain tumour as well as offering support to those affected and raising awareness of the signs, symptoms and impact of the disease in adults and children.

Our strategy

If you have further questions, need to clarify any of the information on this page, or want to find out more about research and clinical trials, please contact our team:
Support and Information Services
0808 800 0004 Free from landlines and mobiles
Phone lines open Mon-Fri, 09:00-17:00