What we think

The Brain Tumour Charity campaigns on a range of topics that affect people with a brain tumour.

Our evidenced based position papers highlight an issue and state our recommendations for change that will improve outcomes for people with a brain tumour. We also respond to consultations on areas of policy that directly or indirectly impact the brain tumour community.

Position statements

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The Cancer Drugs Fund

This document provides our position on The Cancer Drugs Fund, which was set up by the Westminster Government in 2010 to allow patients in England access to cancer drugs which are not routinely available on the NHS.

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My Surgeon Data

This document provides an overview of My Surgeon Data and our position on the issue.

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Stereotactic Radiotherapy

This document provides our position on stereotactic radiotherapy, a type of radiation treatment which uses a large number of precisely directed radiation beams to treat high and low grade brain tumours.

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Access to clinical trials

This document covers access to clinical trials for people with a brain tumour, what the issues are and what we are doing to address them.

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Innovation in treatment

This document provides an overview of innovation in the development and delivery of treatments, The Brain Tumour Charity's position, and what we are doing to address the issues raised.

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5-ALA

This document outlines what 5-ALA is, why we think it's important and what we are doing to improve access.

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Cannabidiol (CBD) oil

This document provides an overview on CBD oil and the recent reviewed classification of CBD oil, The Brain Tumour Charity's position, and what we are doing to address the issues raised.

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Data Sharing

This document outlines how cancer data is collected, stored and shared and why we think it is important.

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The European Union

This document outlines our position on several issues that affect people with a brain tumour and which the EU oversee.

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Cannabis

This document provides an overview on cannabis treatments, The Brain Tumour Charity's position, and what we are doing to address the issues raised.

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End of life care

This document provides provides some information about end of life care for people with a terminal brain tumour diagnosis, the Brain Tumour Charity's views on what should be made available, and what we are doing to address the issues raised.

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Biobanking

This paper outlines our position on donating biological samples and brains to research, why it is important and what more needs to be done.

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Proton Beam Therapy

This document provides our position on proton beam therapy, a form of radiotherapy typically used to treat more complex tumours.

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Ketogenic Diet

This document provides an overview of the ketogenic diet, how it relates to brain tumours, and our position on the issue.

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Neurorehabilitation

This document provides our position on neurorehabilitation, the process of assisting individuals with conditions that affect the central nervous system, such as brain tumours, to maximise their independence and function after injury or illness.

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Access to benefits

This document provides an overview of the changes to the welfare system in the UK over the last six years, The Brain Tumour Charity's views on the impact on people affected by a brain tumour and what we are doing to address the issues raised.