Track how your diagnosis affects your cognition and memory
Take BRIAN’s Snap Challenge to measure how your memory and thinking speed is affected by your brain tumour.
1 in 2 people we spoke to said they experienced problems with their memory or speed of thought because of their brain tumour or its treatment. Taking the Snap Challenge in BRIAN only takes 20 seconds but is a great way to test your short-term memory and reponse speed.
During the Snap Challenge you’ll be shown a number of different icons and all you need to do is click whether or not the current image matches the last icon you saw.
By completing the Snap Challenge regularly, you’ll be able to track how your score changes from day to day and you can use the results to talk to your consultant or GP if you have any concerns.
What is BRIAN?
BRIAN is our online app which has been developed by The Brain Tumour Charity to help people cope with a brain tumour. BRIAN will help you – and those supporting you – to understand how you are doing and to make better-informed decisions.
BRIAN has been designed for all kinds of people, whether you are living with a brain tumour, caring for someone who is, or you work in healthcare or research.
How else can BRIAN help me?
BRIAN allows you to record your entire brain tumour experience in one place – you can add symptoms, treatments, side effects, appointments and much more. You can also share your data with anyone you trust – such as family, carers and your healthcare team – enabling them to better understand your situation.
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BRIAN’s tools, like the Benefits Checker and Clinical Trials Finder, offer information that may be difficult to find.
BRIAN’s insights provide information about others on the same journey.
BRIAN can help you keep track of treatments, appointments, medications, side effects and wellbeing.
This information can be quickly and easily shared with healthcare professionals.
You can contribute valuable historical information to BRIAN’s database, by sharing details of treatments and quality of life.
Questionnaires in BRIAN provide researchers with even more information.
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You can share your BRIAN information with healthcare professionals, carers or family members.
The visualisations in BRIAN help to convey how things have been since the last appointment.
BRIAN supports researchers by granting them access to anonymised user-entered patient outcome and quality of life data.
BRIAN will provide cost-free access to data sets from national healthcare organisations.
Here are just some of the features you’ll find in BRIAN.
How sharing your experience helps
We have obtained ten years of brain tumour data from NHS Digital and Public Health England and have used that to build insights for you into things like treatments offered, paths to first treatment and tumour incidence per region.
We’ve also built a daily check-in feature, which allows you to record how you’re doing, emotionally, physically and cognitively on a day-to-day basis. We combine these daily snapshots to give you and people supporting you a broader perspective on how you are.
By recording and allowing access to your anonymised data, researchers will better understand people’s quality of life when living with a brain tumour diagnosis. They can also use the collective experiences of patients to drive forward research into brain tumours and accelerate progress towards a cure.
Get in touch
Please bear in mind that BRIAN is a work in progress and as with any new and pioneering product, we will be working hard to improve and enhance it as we move forward.
You can sign up to BRIAN and start using it to track your brain tumour journey no matter where you live in the UK or the rest of the world. However, the background data that currently drives all the insights within BRIAN comes only from patients based in England.
Regardless of where you’re living, we know signing up and entering your data will help to improve our understanding of brain tumours and advance us faster towards a cure.
We’d love your feedback on anything you think that we could do better, so we can make BRIAN as great as possible. Get in touch using the contact form in BRIAN.