Author: Jo Porter
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Volunteers’ Week: Thank you to all our volunteers
If you’ve ever received a certificate to thank you for fundraising for us, it may have been created and sent to you by one of our amazing volunteers. This Volunteers’ Week we’re celebrating all those 406 individuals – but especially our longest serving volunteer Vera.
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Breaking down brain tumour terminology
Low grade, high grade, benign, malignant, brain tumour, brain cancer – what do these terms actually mean?
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“We must give brain tumour patients access to more clinical trials.”
In an article for Open Access Government, published in April 2026, Dr Simon Newman explains how we’re trying to help give more people better access to clinical trials.
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“If it wasn’t for the optician…. he might not be here” ~ Kayden’s story
Behind every request we receive for a free Brainy Bag, there’s a family navigating one of the hardest moments of their lives. Here’s Kayden’s story
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“If love alone could have saved James, he’d have lived forever” ~ Mum Dianne
Despite their enormous grief, James’ family and friends raised more than £10,000 in 24 hours.
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Vorasidenib approved for NHS use in England
In a positive end to Brain Tumour Awareness Month 2026, we are pleased that NICE has approved vorasidenib to treat some types of brain tumours.
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Why we walked – The Twilight Walk 2026
Behind every individual involved in our flagship fundraising event, The Twilight Walk, there’s a poignant motivation. The walk may now be over for another year, but its impact is not.
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Superfan Sophie meets her superhero
A young football fan, whose family we’re supporting, had a surprise visit to meet her favourite player.
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New Chair of Trustees – Same Mission
As we say a fond farewell to Jack Morris CBE, we are pleased to announce the appointment of Fraser Longden as our new Chair of Trustees.
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Schoolboy Oliver’s nine marathon challenge
A nine-year-old boy from Yorkshire is running the equivalent of nine marathons in four months to raise money for us after we helped his family navigate dad Tom’s brain tumour diagnosis.
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From worried parent to charity team manager – Shona’s story
In 2007, Shona Floyd was supported by what went on to become The Brain Tumour Charity. Ten years later she started working for us – and she’s still here as we mark 30 years since we were founded.
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Family celebrates medication milestone – an update
Alexander, 12, now takes dabrafenib tablets at home and his family has been released from the stress of crowdfunding for his treatment.
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Brain tumour data: statistics that shock, but can also bring hope
When we tell people that brain tumours are the biggest cancer killer of the under 40s, their first reaction is often shock or disbelief. What’s the evidence for this and where do we get our figures from?
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Remembering Kit Heath
The jewellers Kit Heath have designed a bespoke silver necklace in memory of their founder – and £5 from the sale of each piece will be donated to The Brain Tumour Charity because we are “close to their hearts.” In this guest blog post, Kit’s sister Kate explains why.
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Claiming disability benefits like PIP
A guest blog post by volunteer Chandos Green, with some top tips from our Money Advice Clinic.
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“I considered leaving nursing, then I discovered clinical trials” ~Daisy’s story
Find out what a clinical research nurse does, from empowering patients to guiding them through complex treatment options – all to drive medical breakthroughs.
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CONNECT TarGeT – a clinical trial into childhood brain cancer
We’re pleased to announce an ambitious new clinical trial into childhood brain cancers.
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Why approving vorasidenib matters
We’ve sent your feedback to the consultation on NICE’s draft guidance on vorasidenib. These are just some of the powerful testimonies we received that formed part of that.
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“Understanding what would happen… allowed me to be the best mum I could possibly be.” – Becca’s story
When Becca and Ted Thomson-Glover found out their son wouldn’t survive his brain tumour, they wanted to know what to expect so that some things were in their control. Now they’ve recorded a podcast to help others going through that agonising time.
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‘So much more than a walk in the park’ ~ Chris’s Twilight Walk story
After spending 34 years in the British Army, Chris Fowke knew about resilience and discipline. But even that hadn’t prepared him for his biggest challenge yet: recovering from a brain tumour.
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‘My heart breaks for those less fortunate than me’ ~ Nikita was diagnosed after a private brain scan
A teacher from Kent has urged others to advocate for themselves after her migraines were repeatedly dismissed – only to discover that she had a brain tumour.
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Research reveals new therapeutic target to treat brain cancer
Future Leader Dr Ángel Álvarez-Prado has discovered that blocking a particular protein can both reduce GBM cells’ ability to multiply and kickstart the immune system.
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Meet three of the runners taking on the Berlin Marathon for brain tumours
The Berlin Marathon is one of the six World Major Marathons. This year The Brain Tumour Charity has 37 runners taking part, including Will Snelson from Cheshire, Young Ambassador Catherine Hogan, Nicole Cutler, from Boston, Massachusetts and one of our own team: Matt Beagley.
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Supporting a partner with a brain tumour – Kieran and Abbie
When truck driver Kieran Shingler was diagnosed with a brain tumour, and later lost his mum to lung cancer, his childhood sweetheart – Abbie – supported him every step of the way.