The patient information sheet supports the consent process for BRIAN, our database and web app. It has been created to help you understand what you are giving us permission to do, and to ensure that you have been adequately informed about what BRIAN is and what it does.
Specifically, the leaflet explains what information is being collected, how it is being stored and used, and the benefits of collecting, storing and sharing this information ethically and responsibly.
Before signing the consent form, you need to be fully aware of everything that could happen to your information so that you can make an appropriate decision that is right for you.
Please download this patient information sheet if you are the parent or legal guardian of a child aged 0-11 years who has, or has had a brain tumour.
Please download this patient information sheet if you are the parent or legal guardian of a child aged of 12-15 years who has, or has had a brain tumour.
Please download this patient information sheet and read it to your child.
Please download this patient information sheet and it read with your child.
Aside from your name, these are the details we need to request your data.
*If you are a parent, please have the NHS number and date of birth of the person with a brain tumour ready when completing the sign up form.