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Coping with being less independent

One of the most common difficulties people face after a brain tumour diagnosis is feeling like they’ve lost their independence.

The physical or cognitive challenges they experience may mean they now need help with everyday tasks, such as dressing, shopping or even socialising. If they’re no longer able to work, they may need to depend on their partner financially too.

For many people, losing their driving licence represents something much bigger than having to rely on loved ones or public transport to get around. It can become symbolic of all the ways they’ve become less independent because of their diagnosis.

For partners, the additional caring responsibilities can make them feel like they’ve lost some of their freedom. Especially if they’re balancing this with their career or raising a family.

We know that, sadly, some people in our community have seen changes in their loved ones that have led to them being violent or aggressive, although this is rare. 

These changes can seem even more worrying in the current situation, but it’s important to remember that if this is something you’re experiencing, your safety is paramount and the current social distancing (or isolation) rules don’t apply if you need to leave your home to escape domestic violence.

If you feel you’re at risk of abuse, remember there’s help and support available, including police response, online support, helplines, refuges and other services.

You are not alone!

Find out more

A member of our Support & Information Team provides support over the phone to somebody affected by a brain tumour diagnosis

Get support

If you need someone to talk to or advice on where to get help, our Support and Information team is available by phone, email or live-chat.