Coping with brain tumour anxiety
Living with a brain tumour can be an exceptionally worrying time. However, there are many ways to help you cope with brain tumour anxiety.
On this page we’ll cover some simple tips on coping with brain tumour anxiety, taken from the experiences of patients, friends, family and carers:
- Distract yourself
- Talk to others
- Practice mindfulness
- Psychological therapies for coping with brain tumour anxiety
- Cognitive behavioural therapy (CBT)
- Applied relaxation
- How do I find psychological therapies services?
- Expert tips for coping with brain tumour anxiety
How to cope with brain tumour anxiety
It seems simple, but keeping busy can be a good way to keep your mind off your worries. Therefore, many people have found that starting a new hobby, taking a trip or having a day out are great distractions. Furthermore, something as straightforward as reading a book, watching a film or spending time with loved ones can be a positive way to keep anxiety at bay.
Talk to others
Talking to others in a similar situation is another powerful tool to help reduce your anxieties and gain support. We currently run several online support groups for people affected by a brain tumour and they can be great place for you to start learning how to cope with brain tumour anxiety.
You may also like to share your story more widely. This may not only be therapeutic for you, but may help others who have similar worries and anxieties.
Of course, sharing widely may not be for you, but talking to selected others can still help and chatting with a close friend who isn’t in the same situation can provide a fresh perspective. Do what feels right for you!
If you are affected by a brain tumour and feel you cannot cope with your current situation, you can call our Support Team.
If you need someone to talk to outside office hours, you can call the Samaritans on 116 123.
If you need to talk, we’re here for you. We offer free sessions to help you cope.
While mindfulness may not be for everyone, it has been shown to reduce levels of anxiety and can help some people cope with brain tumour anxiety.
Mindfulness will naturally be difficult to begin with, but it does get easier with practice – the key is to stick at it and keep trying. Also, it’s important to remember there’s no right or wrong way to practice mindfulness.
The NHS provides several tips on their website on how to practice mindfulness:
- Be aware of the everyday and note the small things about your surroundings.
For example, go for a walk and notice the leaves blowing on the trees or take note of the sensations of what you are eating – this can help keep your mind in the present.
- Try something new.
This can be as simple as taking a different route to the shops or to school to pick up your children. Likewise, if you’re working, you could try sitting in a different seat for meetings or going somewhere new for lunch.
- Watch your thoughts.
This isn’t about making your thoughts go away, but picturing them as mental events that don’t have to control you. Think of them as buses that come and go – when they arrive, you don’t have to get on them, you can just watch them pass.
- Name your thoughts and feelings.
Silently or verbally noting what you’re feeling, for example “This is anxiety” or “I’m feeling anxious about my scan results”, can help give you a greater awareness of your emotions. Once you’ve identified what you’re feeling, it can be easier to cope with and sometimes noting a feeling is enough for it to pass.
You may find it difficult to ‘be in the moment’ and practice being mindful, but there are a number of tools that can help. Sitting meditation, yoga and tai-chi can be helpful practices to stay in the present, away from anxieties and physical resources can be downloaded from the internet – for example, free adult mindfulness colouring sheets.
Psychological therapies for coping with brain tumour anxiety
If your anxiety is affecting your daily life, you may want to consider psychological therapies, such as cognitive behavioural therapy (CBT) or applied relaxation. These can be offered in different ways, for example, using a self-help workbook, as an online course, one-to-one or in a group.
Cognitive behavioural therapy (CBT)
CBT helps you recognise and overcome your anxious thoughts by changing negative patterns in the way you think and behave. Although it’s sometimes called a talking therapy, CBT provides practical ways to improve your current state of mind rather than focusing on issues from your past.
It involves working with a clinical psychologist or other mental health professional in regular sessions over a period of time and can be provided by the NHS. You can self-refer for CBT, which means that, while you do need to be registered with a GP, they don’t need to refer you for treatment.
Applied relaxation involves learning how to relax your muscles in a particular way whenever you feel anxious. Therefore, it needs to be taught by a trained therapist, who will meet you for regular sessions over a period of time. As with CBT, you can also get applied relaxation therapy on the NHS and self-refer.
How do I find psychological therapies services?
For NHS psychological therapies services, you can find the service provider closest to you using the online tool.
We also provide free counselling for anyone affected by a brain tumour.
However, you can also pay to access psychological therapies services privately. The British Association for Behavioural and Cognitive Psychotherapies (BABCP) has a register of accredited therapists in the UK, also The British Psychological Society (BPS) has a directory of chartered psychologists.
Counselling Directory can also help you locate a counsellor or therapist local to you.
If you do choose to pay for private treatment, it’s important to make sure your therapist is registered with a recognised professional organisation and to be aware of the cost.
You can also learn some CBT self-help techniques which you can practice by yourself.
If your anxiety is particularly severe, and none of the suggestions above have worked or you don’t feel they are right for you, you may want to speak to your GP about medication.
There are a variety of medications that can be used to treat anxiety. Some can only be taken for a short time, but others can be prescribed long-term. However, your GP will let you know about any likely side-effects and make sure any new medication won’t interfere with treatments you’re having for your brain tumour.
Tips from our community for coping with brain tumour anxiety
“My partner was given anti-anxiety medication by the GP for when they’re feeling really anxious. It usually helps them!”
“Try to remind yourself the scary, anxious thoughts you’re having aren’t facts. It’s just your brain going to the worst case scenario. Try to focus on what you know for certain.”
“I find the ‘Calm’ app helps me when I’m anxious at night and can’t sleep.”
“I try to focus on what I can control and to let go of the things I can’t. It’s a little bit of ‘fake it until you make it’ behaviour, but I honestly don’t stress about a lot of unnecessary things anymore.”
Join our Online Support Communities for more tips about coping with a brain tumour diagnosis, from people who truly understand what you’re going through.
What causes anxiety?
Clare Jacobson, a specialist clinical psychologist at Guy’s Hospital, discusses what anxiety is and what can cause it.
Expert tips for coping with brain tumour anxiety
We asked Dr Clare Jacobson, Specialist Clinical Psychologist at Guy’s Hospital for advice on how to cope with brain tumour anxiety.
If you’re feeling overwhelmed, imagine you’re in a ship that’s caught in an emotion storm. The waves are high and you feel you could drown. You can’t stop the storm, but you can focus on keeping steady until it passes. Here are some ways to anchor the ship:
1. Control your breathing
For five breaths, exhale for two seconds longer than you inhale (time this accurately). This changes carbon dioxide levels in the blood, helps process the adrenaline and has a calming effect. Focusing on your breathing also gives your mind a break from ‘worry thoughts’.
2. Use the ‘four, three, two, one’ mindfulness technique
Take a breath and notice four things you can see, then three things you can hear, two things you can feel and lastly one thing you can smell or taste. Engaging all five senses brings you back into the present moment.
3. Try worry time
Choose a specific time to worry each day, e.g. 6.00-8.00pm. If a worry thought pops into your head, notice it and label it as just that – a worry thought that you’ll concentrate on at 6.00pm. Writing down your worries during the time slot can make them feel smaller, reducing their power.
4. Change your relationship with anxiety
Create an image of anxiety, or even craft it from play dough, then start a conversation with it:
- What would anxiety say to you or want you to do or not do?
- What would you say back?
- What would your loved one say to it?
Creating a conversation develops your relationship with anxiety and can give you more freedom.
5. Do what matters to you
It’s usually the things that matter to us that cause anxiety to knock on our door. Therefore, try to stay connected to the things you value in life. Accept that anxiety will be present, but it doesn’t have to get in the way. Do what you love alongside the anxiety, as if it’s one side of the coin and all the joyful elements of what you love are on the other.
Support and Information Services
You can also join our active online community.
In this section
If you need someone to talk to or advice on where to get help, our Support and Information team is available by phone, email or live-chat.
- Coping with depression
- Maintaining your independence
- Support for young adults
- Support for children and families
- Taking care of your mental health
- Losing Myself report
- Top tips for coping with change
- Why talking about your brain tumour diagnosis can help
- Top tips to care for your mental health
Share your experiences and help create change
By taking part in our Improving Brain Tumour Care surveys and sharing your experiences, you can help us improve treatment and care for everyone affected by a brain tumour.